CALABASAS (CBSLA.com) â Joshua Solis of Calabasas is like most 5-year-old boys, but heâs dealing with a rare condition.
Itâs called multiple hereditary exostoses, a genetic disorder in which tumors form on bones.READ MORE: 'Banksy: Genius Or Vandal' Exhibit To Open In Early October
“He will periodically complain of pain of a little bit of pain like behind his knee if he’s taking stairs or if he’s had a really long day,” said Joshuaâs mother, Mary Solis.
She would know.
She also suffers from the condition. While her two older daughters don’t, she knows the pain and surgeries that are in store for her son.
“These tumors can affect growth of the bones. They can affect the angle of the joints. They can cause limbs to be shorter or longer,” Daniel Allison, an orthopedic surgeon, said.
At just 2 years old, Joshua had surgery on his right wrist. Last year, he had surgery on his left.READ MORE: Latino Restaurant Association Kicks Off DINE LATINO Restaurant Week
“Generally it will stop growing as he stops growing, but it will be something he has to manage his whole life,” his mother said.
It was during those visits to Childrenâs Hospital Los Angeles that they discovered the Literally Healing room that gives a new book every day to every patient.
“While we were waiting for Joshua’s surgery, there were books available so it was something for us to take our mind off of things,” she said. “When Josh was waiting for appointments, he was able to have a book.”
“Itâs helped me really kind of makes me happy,” Joshua said.
Thatâs why Joshua and his mother have rallied volunteers and organized a star-studded book fair and drive to give hundreds of books back to CHLA.
“In getting immersed into a book and kinda getting out into a different world and learning more, I think, does a great job to help them with their recovery and their spirits,” the doctor said.MORE NEWS: `Unfathomable': Britney Spears' Lawyer Lashes Out At Singer's Father
The drive is scheduled to take place on Wednesday at the Calabasas Library from 2 p.m. to 6 p.m. in the Founders Hall.