IRVINE (CBSLA.com) — Dozens of Orange County elementary school students Monday raised money and awareness for a rare skin disease one of their peer’s suffers from.
Up to 80 students from Springbrook Elementary School in Irvine sold lemonade at four stands from 9:30 to 2 p.m. in honor of Mikey Fullmer, a 3rd grader, who suffers from Epidermolysis Bullosa.READ MORE: Sheriff: Gunman Shot At Man From Moving Car, Then Chased Him To Lancaster Gas Station To Shoot Him Again In The Head
“It’s epic,” Fullmer said of the fundraiser. “I’ve never felt so handsome before.”
EB is a rare skin disease impacting children and is characterized by blisters and erosions all over the body. There is currently no cure, and treatment often comes in the form of wound care, intensive bandaging and managing debilitating pain and infection.READ MORE: Meat Loaf, Entertainer Known For 'I'd Do Anything For Love,' Countless Other Hits, Dies At 74
“…it has to be soft foods that don’t tear up the lining of his mouth and asophagus,” Mikey’s mother Heather said of his diet.
Sores can even be caused by clothes, or hugs.
All profits from Springbrook’s Day of Service lemonade stands went to the EB Research Partnership, which was founded by Mikey’s parents Ryan and Heather.MORE NEWS: Comedian Louie Anderson Dies At 68 After Battle With Cancer
For more information on Epidermolysis Bullosa, visit the EB Research Partnership’s website here.